Synopsis - Health & Medical #4 - The importance of having appropriate consent for research studies and consumer’s changing attitudes to health data use for linkage studies

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Video in TIB AV-Portal: Synopsis - Health & Medical #4 - The importance of having appropriate consent for research studies and consumer’s changing attitudes to health data use for linkage studies

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Synopsis - Health & Medical #4 - The importance of having appropriate consent for research studies and consumer’s changing attitudes to health data use for linkage studies
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CC Attribution 3.0 Unported:
You are free to use, adapt and copy, distribute and transmit the work or content in adapted or unchanged form for any legal purpose as long as the work is attributed to the author in the manner specified by the author or licensor.
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2017
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English

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Abstract
Anne McKenzie AM, Head of the WA Consumer and Community Health Research Network The importance of having appropriate consent for research studies and consumer’s changing attitudes to health data use for linkage studies.
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hello I'm Ann Mackenzie and I work as
the head of the consumer and Community
Health Research Network here in Perth
Western Australia we've been working with health consumers over the past 15
years to raise awareness of the linked
data capability and the benefits of using linked data research and I'm going
to talk to you about how we've seen a real shift in attitudes from people
being nervous and concerned about their risk to privacy to moving to a point now
where people say have good governance in place don't hide behind privacy issues
and use the data that you have to make a difference to health outcomes for
everybody
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