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Health & Medical Data Short Bites #4 - Patient views on data sharing - 2017.11.01

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Health & Medical Data Short Bites #4 - Patient views on data sharing - 2017.11.01
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21
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CC Attribution 3.0 Unported:
You are free to use, adapt and copy, distribute and transmit the work or content in adapted or unchanged form for any legal purpose as long as the work is attributed to the author in the manner specified by the author or licensor.
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Abstract
This short 30 minute webinar is the fourth in the Health and Medical Short Bites webinar series which aims to support better management and publication of Health and Medical data. Informed consent by research participants is essential for the collection, use and sharing of sensitive data. Storage, access, de-identification and plans for sharing are important considerations when gaining patient consent. Speakers 1) Assoc Prof Lorraine Smith, Patient consent and HealthTalk Australia, University of Sydney http://healthtalkaustralia.org/ is a research-based collection of personal experiences of health conditions in social context, captured on film, audio and in text. The interviews are used to produce innovative, publicly available health experience targeted online resources. 2) Anne McKenzie AM, Head of the WA Consumer and Community Health Research Network The importance of having appropriate consent for research studies and consumer’s changing attitudes to health data use for linkage studies. 3) Kate LeMay, Senior Data Specialist, ANDS Kate will explore current research into participant attitudes to use of health data in Australia and internationally.